Survey on Personal Genomics, Privacy & Consent

Here’s an announcement for a new “interactive” or “deliberative” survey that we are running, on Personal Genomics, Privacy & Consent. Anyone can participate. (We refer to the survey as “interactive” or “deliberative” because participants get to see each other’s answers, and respond to them, while taking the survey.)

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Our research group (at University of British Columbia, Saint Mary’s University, & Ryerson University) has created an online, interactive survey to better understand values & attitudes related to Personal Genomics. We’d like to include input from readers of this blog because they represent important perspectives on ethical issues related to Personal Genomics.

The survey will take about 10-20 minutes.

To take the survey you will need to register. This requires entering your email address. This is so that we can make the survey safe from spammers & hackers. We will not be able to link your e-mail address with your answers, & we won’t give your details to any third party.

If you have questions or concerns, email us at chris.macdonald@smu.ca or nwalton@ryerson.ca.

You can access the ‘Personal Genomics & Privacy’ survey via this link: http://www.yourviews.ubc.ca.

Thank you. We value your input.

Chris MacDonald PhD. & Nancy Walton, Ph.D.

~ by Nancy Walton on September 27, 2009.

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