Comments for Research Ethics Blog

Comment on Research Fraud Case Raises Concerns Over Ethics of Psychology Research by ninezip

ninezip — Tue, 15 Nov 2011 23:31:08 +0000

It is interesting that the these frauds have a remarkable parallel in the Man-Made Global Warming industry where results were apparently manipulated to achieve predetermined results for usually self-serving reasons, including the capitulation and subjugation of subordinates.

Comment on Canadian Working Group Recommends Against Funding for Controversial MS Trial by Jessica Forester

Jessica Forester — Tue, 28 Jun 2011 13:37:21 +0000

After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.”
Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. http://www.youtube.com/watch?v=jFQr2eqm3Cg.
Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”.
Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”.
Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy.

Comment on Disclosing Conflicts of Interest: The Case of Tamiflu by ninezip

ninezip — Mon, 06 Jun 2011 14:41:08 +0000

I cannot think of ANY situation where a Medical Specialist’s relationship with the Pharma company whose products are being studied, recommended to PHAC, or promoted, by that Specialist, should not be declared / published. I would be interested in looking at contrasting ideas?

Comment on China’s New Research Ethics Guidelines by Nancy Walton

Nancy Walton — Fri, 22 Apr 2011 21:10:23 +0000

Hi there – From what we can see, it’s not available yet or at least not posted anywhere on the SDFA’s website that I can find. As of the story date, it wasn’t available online and apparently still isn’t! I would check back to the link to the SDFA page highlighted in the story and check back every so often. Thanks for reading!

Comment on China’s New Research Ethics Guidelines by matt baker

matt baker — Fri, 22 Apr 2011 21:03:01 +0000

where I can find a full copy of the recent guideliines?

Comment on Cancer Research & Red Tape by susan cutting

susan cutting — Sat, 16 Apr 2011 20:08:09 +0000

I’m the individual that the mcf10 cell line was derived from. Much of what happened to Henrietta Lacks happened to me. The Detroit Free Press did a article on me Feb.20th, 2011. I think you may be interested in my “consent form”, which was handed to me seconds before they took my blood.
I’m pleased to see how things are finaly starting to change. I must admit, I’m surprised how much power “special interests” have in research. Feel free to contact me if interested.

Comment on Prenatal Surgery, Hope for Spina Bifida and Ethical Reflection by Ruby Osorio

Ruby Osorio — Wed, 06 Apr 2011 07:02:17 +0000

Thank you for your valuable post.

We have decided to share it with our global physician audience at PhysicianNexus.com: http://physiciannexus.com/forum/topics/prenatal-surgery-hope-for-1

Ruby
Team Member
http://www.PhysicianNexus.com
Physicians connecting worldwide

Comment on Sex-Toy Research: Nothing Wrong With a Little Controversy by Lee Lee - Sex Toy Lover

Lee Lee - Sex Toy Lover — Wed, 06 Apr 2011 03:43:07 +0000

We really need to get past our societal sexual inhibitions. Sexual health is something that should be celebrated and sex toys are like the party favors of that celebration. One thing that I found out recently was that sex toys can contain toxins in them and I was truly shocked. Seems that we should be educated about such things. I found some really great articles on the Holistic Wisdom sexual health site that covered which sex toys are safe and which ones are not. People need to be proactively involved in their sexual health… not just their health.

Comment on Parents Complain Over “Opt-Out” Consent In Kindergarten Study by Parents complain about an “opt-out” research consent | MERETI Network

Sun, 27 Mar 2011 22:40:33 +0000

[...] mechanism. Please see this story in the Research Ethics Blog website by clicking here. Share « Training Initiative for REC at Jazan University, Kingdom of Saudi [...]

Comment on Zamboni: “Wait for trials.” by Xanthippe

Xanthippe — Tue, 15 Mar 2011 20:26:16 +0000

I commend you for your bravery! As someone with MS who has gone from being bedridden to walking without a walking aid and NO SURGICAL INTERVENTION, I’m not convinced of Zamboni’s theory, which unfortunately has gained support in some segments of the MS community (I recognize the names of the pro-CCSVI posters here from other MS sites). I regard them as our version of the anti-vaccine activists who have the best intentions for those affected but in the end, wind up doing more harm than good. I will say however, that the whole controversy inspired me to take a Medical Ethics course (so I understand terms like “clinical equipoise” when they are used). Real patient empowerment is the opposite of desperation!